Fascinating talk with author of the
book "Facing Death: A Companion In Words and Images". A
must have for anyone who has a loved one who is terminally
ill.
The challenge of
preparing for one's own death is enormous. It is
difficult to overcome one's own reluctance to talk about
death and dying -- let alone the fear of family and
friends -- and yet it helps the process for the words to
be shaped. In addition, in the final stages of life, the
endurance for study is limited but the need for
meaningful content is very great.
The morsels of
wisdom and comfort in Facing Death, along with
the beautiful, accompanying nature photographs, address
these needs. Throughout, this book allows readers to
make their own sense of what is presented, to access
what is offered in their own fashion, to identify
particular items for frequent re-visiting, to
personalize and customize, if and as they wish.
Facing Death
understands death to be, though unwanted in most cases,
an inevitable and normal part of life. The book presents
death in this way but draws attention to the process of
life, in all its heartache and glory. Facing Death
has been awarded a 2009 National Best Book Award
from USA Book News
I am one of those
people who has been writing since before I could ride a
bike. I recall my Grade Two teacher asking me to stay
after class several days in a row, so that we could bind
together a little book of the poetry I was writing then.
I do not think I could possibly recall all the
beginnings I have made to stories over the years. In
fact, I am working now on a novel again -- whether it
sees the light of day or not has yet to be seen.
Some of the
details of my life are contained in the files to the
left. My Facebook site allows a way to learn more and
perhaps to interact some.
I just have to
mention that one of my regular volunteer passions is
advocacy work on behalf of the grandmothers of
sub-Saharan Africa and the children orphaned by AIDS in
their care. Again, I write a good deal for this cause
and have authored most of the text on the
advocacy
section of the Grandmothers Campaign site.
If you would care to learn more about this cause please
check out the web site of the
Stephen Lewis Foundation.
She was petite, Dorothy was. She was
small in stature but potent in so many other ways: a
vibrant, intelligent, opinionated, talented, loyal and
wise woman, who was inclined to use giggles like
punctuation marks and loved the prairies. Twelve years
older, she was not just my big sister but a hero to me
growing up. Once I was an adult we became friends. Later
still we became fellow-strugglers against the assaults
of breast cancer.
To date, I am winning my battle. Regrettably, she lost
hers.
When Dorothy told me, after years of aggressive
treatment, that she had finally been given six weeks to
live, I was devastated. I couldn’t imagine the world
without her. Worse still was that she was so far away. I
had spent years in pastoral and supportive care,
frequently a companion to people who were preparing for
death, and I felt I could be a help if I could only
spend time with Dorothy. But there she was, out of
physical reach.
My solution was to create a set of cards printed onto
business card blanks, with messages I thought might be
of use to her from time-to-time. I set down some of my
own thoughts; quoted other writers; included scripture
verses because I knew she would like that; and included
personal notes from me to her. I had the little deck of
cards with me when I paid a visit to her shortly after
her deadly prognosis. She was propped up with her walker
in her family cottage when I gave the cards to her. She
received them very solemnly—no giggles punctuating this
occasion. I asked her please to read them through once
and then decide if there was any further use to which
she might put them.
About a month later, she mentioned that she was reading
the cards every day, almost as a devotional practice.
Then, by strange chance, she lost the set in the course
of moving back to the city. I was disappointed, thinking
of how much I had poured into the cards, how much they
mattered to me as a means to reach out to her. She found
them again just before she went into Palliative Care for
the last time. I have them now.
In the meantime, I told a friend who worked with many
cancer patients about what I had done for my sister. Her
response was electric: “You mean to tell me you’ve
created a set of cards for the dying?” She went on to
tell me that she had been looking for a simple,
meaningful resource like that for years. I had to get
these messages out into the world, she said. In fact, I
WOULD get them out there, she promised with presumptuous
abandon.
So, I went back to the messages I had gathered, keeping
regular phone contact with Dorothy and paying visits
when I could. A desire to improve upon and further
generalize what I had created for her sent me rifling
through old journal entries, eulogies, sermons, poetry
and prayers I had written. It also sent me to my own
library and to the internet in search of complementary
quotes from others. Eventually, I approached a long-time
friend and award-winning nature photographer, Maggie
Sale, to collaborate with me on the project, canvassed a
few local end-of-life professionals for endorsements,
and began the long, slow process of pitching the idea to
publishers.
In the last eight days of Dorothy’s life, I was one of
those who spent time with her each day. Her daughter and
I made her laugh as we played "Eccentric Aestheticians"
and gave her a manicure. There were times she woke
frighten from sleep, unable to sort out reality from
nightmare. She was very weak. Each day I read through
the cards for her, at her request. The last time I read
them was on a Wednesday afternoon. It was just the two
of us and we both had tears running down our faces. She
died early the next morning.
So it is that my sister Dorothy was the inspiration for
my book, as she was an inspiration for much of my life.
The book, Facing Death, is dedicated to her
memory. I think she would be pleased.